I momentarily
worried that I would be writing this “live”, right into the blog post without
reading it first in word. The network
took care of that. I probably still won’t
read it over before I post it. Not for
any egocentric reason…just because it’s 1:00 a.m. and I can’t sleep. Again.
And that is never a great time for editing and rewriting.
So why can’t I
sleep? I guess my mind is racing. I thought maybe if I got some stuff done it
would be easier to rest. So I did a
small portion of the kitchen organizing John and I talked about. I got bills together and sent them to
PPF. Called the YMCA guy to ask about
membership. Took the kids to the pool,
Ollies, back to the pool, and picked up some $5 pizza’s for dinner. Read “You Are My I Love You” to Neil, which
is one of my favorite all time books ever!
So sweet, so lyrical. Found it at
Ollie’s in board book! So I could let
Neil take it to bed with him, which was nice.
I read more Harry Potter to Aiden and flossed his teeth and went to bed
early…crickets. Bubble popping on my
phone, word search, a little grown up content.
No sleep. No one’s on facebook
right now either.
My mind rolls over
crap I can’t control. How much I hate
cancer. How it has screwed up so damn
much. Why did John have to get
this?? He was my rock. Now I have to be his. I (guess) I know I can do it, but my version
of “rock” is somewhat covered in moss, a little craggy, hollow underneath…trying
to be metaphorical with the fact that I am, well, me. For lack of a better description. I’m smart, but not in an obvious way. I’m very strong, also not in an obvious
way.
How do you do
it? I have no idea. What are you supposed to hope for? Don’t know that one either. This cancer…cancer is bad enough, even when
you have the “good” kind. The kind you
can get out pretty easily, treat with clear steps, that rarely if ever comes
back. John’s cancer is not that
cancer. Amy told me the other day that
she knows someone with a GBM that is 10 years out and ok. That will be John. I don’t see how it can’t be. While at the same time as being terrified
that it won’t be. How do those two
diametrically opposed realities exist in the same mind??? With lots of insomnia, I guess.
He cried the other
day, just a tiny little bit. He said he
loves being a dad and he cried while he said it. He wants time with Neil. So the next day, I called all the places I
could think of that we could send Cilly to.
I want her to go to CLC, with Sue as her teacher and her Eli and Elijah
friends with Mom’s that are allergic to gluten, or with eyes like dark moons full
of understanding, with Amy strong and thin and funny, and her little
girls. I hate that this is not an
option. I hate that nowhere seems to be
an option. I hate that I have taken to
creatively begging celebrities that I admire for help. I still think it’s better than playing the
lottery on several levels, but still…
In Good
Housekeeping, they interviewed Robin Roberts about cancer and life after it…one
thing she talked about at the end of the article was when she spoke with
another survivor about the way that you wonder if you will ever go a day
without thinking about cancer. She said
it will happen and the woman she was speaking to called her excited, sharing
that she had gone a week without thinking about it. I don’t know that John’s cancer will let us
do that. Maybe it will, but I have my
doubts, what with scans every two months, chemo 5 days on 23 days off, blood
work every week, heart flutters on my part every time there is a mood swing,
memory loss, headache, or extreme exhaustion.
And I would love
it if someone could find me that “who cares if the house is a mess” pill, or
maybe, even better, the “let’s get off your ass and organize” pill. That would be awesome.
I wish I knew what
the bottom line was. I think about
school, and being excited to teach second grade. I got a call today from Loudon County to come
interview for a grade five position. Now
I don’t think I even want to go. I don’t
want to deal with the emotions of not getting it. I did that with my three in county
interviews. That was harder than I
thought. Plus I have found so many cool
books for the little guys! Does that
even make sense?
Why am I even
blogging this? It isn’t funny, or
interesting…It’s just my rambles. I want
to find a way to dreamland. I want a
home. I want to have more patience with
my kids. I want to work for someone who
encourages me to learn and grow. I want
to laugh more. I want to stop having to
worry about where gas money will come from and relying on people who barely
know me for donations to cover my rent!!
Who wrote this play???? And why
the hell am I in it??? I feel like
someone cast me in this thing, shoved me on stage without a script, then they
sometimes drugged me and sometimes the other players, they changed directors at
least three or four times, maybe languages once or twice in there, and it’s all
being run by ratings driven by the types of audiences who flocked to the Roman Coliseum
to see large men devoured by lions. I keep expecting a rabid, blood thirsty
rabbit to come flying at my thorax…
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